Reports of a mysterious medical condition are cropping up across the country but doctors are divided on whether it is a real disease or all in their patients' heads.
The disease is called Morgellons Disease. Patients who report having it describe sensations of creepy-crawlers beneath the skin and fibrous filaments oozing out of open wounds.
Interest in the disease was recently rekindled after afflicted Texas teenager Travis Wilson committed suicide about a month ago.
To date, no clinical studies have looked into Morgellons and only one paper mentioning Morgellons has been published in a medical journal. Appearing in a recent issue of the American Journal of Clinical Dermatology, the paper is co-authored by members of the Morgellons Research Foundation, a non-profit organization devoted to raising public awareness about the disease.
As of February 2006, more than 2,000 reports of the disease have been reported on the Foundation's website. Reports come from all 50 U.S. states and 15 nations, including Canada, the UK, Australia and The Netherlands.
The majority of reports have come from Texas, California and Florida.
Patients with the disease often describe feelings of insects or parasites scuttling beneath their skin and open lesions that heal slowly and which ooze out blue and white fibers, some as thick as spaghetti strands. Attempts to remove the fibers are said to elicit shooting pains radiating from the site.
The lesions range from minor to disfiguring in appearance and fibers appear either as single strands or as bundles. Patients also sometimes report the presence of fibers or black granular specks on their skin even in the absence of lesions. Some patients even report symptoms of the disease in their pets—dogs mostly, but also cats and horses.
According to statistics from the Morgellons Research Foundation, about 95 percent of patients also report suffering from disabling fatigue, or "brain fog," that hinders their ability to pay attention. Other reported symptoms include joint pain, sleep disorders, hair loss, decline in vision, and even the "disintegration" of perfectly healthy teeth. It appears that once patients contract the disease, they have it for life. To date, there have been no reports of spontaneous remissions.
A preliminary analysis of the fibers suggests they are more than just lint from household materials such as clothing, carpets or bedding, said Randy Wymore, an assistant professor of pharmacology and physiology at Okalahoma State University and the director of research at the Morgellons Research Foundation.
"The fibers are not common textiles, nor are they black specks of pepper, as several dermatologists have proposed," Wymore told LiveScience.
Further deepening the mystery, some analyses suggest the fibers might be made of cellulose, a molecule generally found in plants.
"They're basically fibers that you wouldn't expect to see in humans," said Raphael Stricker, a Lyme disease expert at the California Pacific Medical Center in San Francisco and a medical advisor to the Morgellons Research Foundation.
The disease is named after a medical condition described in 1674 by the British author Thomas Browne. Known as "Morgellons," Browne said the disorder caused children to "critically break out with harsh hairs on their backs…" The Morgellons Research Foundation says that it is doubtful that the 17th century disease is related in any way to modern day Morgellons.
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